Nathan was diagnosed with Rubinstein-Taybi Syndrome at two days old. Since then he has been diagnosed with the following, all of which are symptomatic of RTS:
* Microcephaly (small head) * Cranial facial anomalies * Deviated septum * Narrow air passages * Obstructive Sleep Apnea * Dysphasia (swallowing problems) * Hypotonia (low muscle tone, very weak) * Aspiration (liquid goes into his lungs) * Angulated right thumb * Malrotation of the intestines * Respiratory illness * Hydrosyringomyelia (fluid surrounding his spinal cord) * Acid Reflux * Undescended testees * Mild to moderate hearing loss * Tethered spinal cord * High white blood cell count (unknown reason) * Broad toes * Morgagni Hernia * Ocular cyst
Brown Bear can be rather exhausting, as you can tell. Sweeeeeeeeeeeeeet!!!!!
ReplyDeleteOh my gosh...Man Down! Man down! Do you have any idea how exhausting it is to be soooo cute all of the time?
ReplyDeleteWhat a sweet little boy.
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