Nathan was diagnosed with Rubinstein-Taybi Syndrome at two days old. Since then he has been diagnosed with the following, all of which are symptomatic of RTS:
* Microcephaly (small head) * Cranial facial anomalies * Deviated septum * Narrow air passages * Obstructive Sleep Apnea * Dysphasia (swallowing problems) * Hypotonia (low muscle tone, very weak) * Aspiration (liquid goes into his lungs) * Angulated right thumb * Malrotation of the intestines * Respiratory illness * Hydrosyringomyelia (fluid surrounding his spinal cord) * Acid Reflux * Undescended testees * Mild to moderate hearing loss * Tethered spinal cord * High white blood cell count (unknown reason) * Broad toes * Morgagni Hernia * Ocular cyst
oh wow, they have grown up a lot. Look's beautiful and they both look so happy
ReplyDeleteI love love love these pictures! What a great way to chronicle them growing up!
ReplyDeleteHow beautiful...the children and the flowers!!
ReplyDeleteKelly W.
Love the pictures. Love the tulips. Love your kids!
ReplyDeleteYes you sure can tell how much they have grown! they are so precious! Love the pics, cant wait to see more!=) hurry hurry lol:)
ReplyDeleteWhat great shots! What great flashback photos! so fun to see the many changes in a year! Looking forward to more....
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